Beyond the Invisible: Lived Experiences of ME, Fibromyalgia & Lyme Disease
Nov 26 6:00 pm - 8:00 pm
Online via Zoom
Patient and Community Partnership for Education (PCPE), in collaboration with **ME Victoria Association** and **BC Lyme Association**, invites you to a community-led interprofessional workshop featuring individuals with lived experience of Myalgic Encephalomyelitis (ME), Fibromyalgia (FM), and Lyme disease. Through powerful personal stories and small-group discussions, participants will gain insight into the often invisible and misunderstood realities of living with these conditions, including stigma, loss of identity, financial challenges, and barriers to accessing timely and effective healthcare. The session will create space for meaningful conversation, questions, and connection while highlighting the importance of empathy, humility, and allyship in care. By the end of the session, participants will have a deeper understanding of how ME, Fibromyalgia, and Lyme disease can affect individuals’ daily lives, well-being, and experiences within the healthcare system. Through personal narratives and discussions with students from different health disciplines, participants will explore the value of recognizing patients as experts in their own experiences and consider how healthcare professionals can provide more compassionate, collaborative, and person- and family-centred care. Register
Patient and Community Partnership for Education (PCPE), in collaboration with **ME Victoria Association** and **BC Lyme Association**, invites you to a community-led interprofessional workshop featuring individuals with lived experience of Myalgic Encephalomyelitis (ME), Fibromyalgia (FM), and Lyme disease. Through powerful personal stories and small-group discussions, participants will gain insight into the often invisible and misunderstood realities of living with these conditions, including stigma, loss of identity, financial challenges, and barriers to accessing timely and effective healthcare. The session will create space for meaningful conversation, questions, and connection while highlighting the importance of empathy, humility, and allyship in care. By the end of the session, participants will have a deeper understanding of how ME, Fibromyalgia, and Lyme disease can affect individuals’ daily lives, well-being, and experiences within the healthcare system. Through personal narratives and discussions with students from different health disciplines, participants will explore the value of recognizing patients as experts in their own experiences and consider how healthcare professionals can provide more compassionate, collaborative, and person- and family-centred care. Register
